Landon

Landon

Thursday, December 27, 2012

More generosity toward Landon

Today hasn't been much different than yesterday, unfortunately. One change has been made to his feeding and that is that his milk is now fortified with some powder formula to get more calories in him. He hasn't had problems tolerating that so far, but most of his problems seem to occur during the night. We aren't sure if he is still full from the rest of the day and his stomach can't keep up with the digesting, but he tends to throw up most of his feedings during then night. Often we have to wake him to eat, which isn't easy, and then once we get him awake, he has past his 20 minute "limit" that we have to try to feed him. It is frustrating because once we get past that 20 minutes, he will wake up and want to eat from the bottle. But we can't feed him from the bottle when he already is receiving his food through the tube. We are really looking for some solutions and aren't feeling very heard. I know that there are some potential changes for tomorrow, so we will see what tomorrow brings.

On another note, Landon received another gift today! We had people bring him a bag that has a tie blanket, stuffed dog, book, and Memory game. The people who brought the gift were the Team River of Hope. They represent a little girl name Riviera who passed away shortly before she turned 3 years old. She spent some time here at the Children's Hospital and they brought the gifts on her behalf. There was a sticker for their Facebook page, so I immediately went to it to thank them. We still are overwhelmed everyday with all the generosity from people and are trying to figure out how to give back down the road.

No visitors yet today, but Aunt Megan will be here shortly with KFC!!

This is actually a couple days ago before his NG tube was put it.

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